Associations and Societies |Medical References | Online CME | Research

Patient Education and Support Groups

American Academy of Dermatology website designed for children

National Organization for Albinism and Hypopigmentation

Alopecia Areata
National Alopecia Areata Foundation

A camp for young people with chronic skin conditions
Camp Discovery

Basal Cell Carcinoma Nevus Syndrome (also called Gorlin Syndrome)
Basal Cell Carcinoma Nevus Syndrome Life Support Network

Congenital Nevi
Nevus Outreach
Nevus Network

Cutaneous T-Cell Lymphoma - Mycosis Fungoides
Cutaneous T-Cell Lymphoma Information Page

Ectodermal Dysplasia
National Foundation for Ectodermal Dysplasia

Ehlers-Danlos National Foundation

Epidermolysis Bullosa

Eczema/Atopic Dermatitis
National Eczema Association

For kids: “Kids Skin Health"

Hemangioma Education
National Organization of Vascular Anomalies (NOVA)
Vascular Birthmark Foundation

Foundation for Icthyosis and Related Skin Types, Inc.(FIRST)

Incontinentia Pigmenti
National Incontinentia Pigmenti Foundation

Klippel-Trenaunay Syndrome
K-T Support Group
Sturge-Weber Foundation

Lupus Erythematosus
Lupus Foundation of America

Mastocytosis Society
Pediatric Mastocytosis Organization, also known as Mastokids

National Neurofibromatosis Foundation

Parry-Romberg Syndrome
Parry-Romberg Syndrome Resource

Pediculosis/Head Lice
National Pediculosis Association

National Pemphigus Foundation

Pityriasis Rubra Piliaris (PRP)
PRP support group

American Porphyria Foundation

Port Wine Stains
Sturge-Weber Foundation

Pseudoxanthoma Elasticum (PXE)
National Association for Pseudoxanthoma Elasticum
PXE International, Inc.

National Psoriasis Foundation
Fundacion Psoriasis de Panama (for spanish-speaking patients)

Scleroderma Foundation

Skin Cancer
Melanoma Patients' Information Page
National Council on Skin Cancer Prevention

Sturge-Weber Syndrome
Sturge-Weber Foundation
National Organization of Vascular Anomalies (NOVA)
Vascular Birthmark Foundation

Tuberous Sclerosis
National Tuberous Sclerosis Association

National Vitiligo Foundation

Xeroderma Pigmentosum
Xeroderma Pigmentosum Society
Xeroderma Pigmentosum Family Support Group

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