Associations and Societies |Medical References | Online CME | Research
Patient Education and Support Groups
American Academy of Dermatology website designed for children
http://www.kidsskinhealth.org/
Albinism
National Organization for Albinism and Hypopigmentation
Alopecia
Areata
National Alopecia Areata Foundation
A camp for young people with chronic skin conditions
Camp Discovery
Basal Cell Carcinoma Nevus Syndrome (also called Gorlin Syndrome)
Basal Cell Carcinoma Nevus Syndrome Life Support Network
http://www.gorlinsyndrome.org/
Congenital
Nevi
Nevus Outreach
Nevus Network
Cutaneous
T-Cell Lymphoma - Mycosis Fungoides
Cutaneous T-Cell Lymphoma Information
Page
Ectodermal
Dysplasia
National Foundation for Ectodermal Dysplasia
Ehlers-Danlos
Ehlers-Danlos National Foundation
Epidermolysis
Bullosa
DEBRA
Eczema/Atopic Dermatitis
National Eczema Association
For kids: “Kids Skin Health"
Hemangioma
Hemangioma Education
National Organization of Vascular Anomalies (NOVA)
Vascular Birthmark Foundation
Ichthyosis
Foundation for Icthyosis and Related
Skin Types, Inc.(FIRST)
Incontinentia
Pigmenti
National Incontinentia Pigmenti
Foundation
Klippel-Trenaunay
Syndrome
K-T Support Group
Sturge-Weber Foundation
Lupus
Erythematosus
Lupus Foundation of America
Mastocytosis
Mastocytosis Society
Pediatric Mastocytosis Organization, also known as Mastokids
Neurofibromatosis
National
Neurofibromatosis Foundation
Parry-Romberg Syndrome
Parry-Romberg Syndrome Resource
Pediculosis/Head Lice
National Pediculosis Association
Pemphigus
National Pemphigus Foundation
Pityriasis
Rubra Piliaris (PRP)
PRP support group
Porphyria
American Porphyria Foundation
Port Wine
Stains
Sturge-Weber Foundation
Pseudoxanthoma
Elasticum (PXE)
National Association
for Pseudoxanthoma Elasticum
PXE International, Inc.
Psoriasis
National Psoriasis Foundation
Fundacion Psoriasis de Panama (for spanish-speaking patients)
Scleroderma
Scleroderma Foundation
Skin Cancer
Melanoma Patients' Information Page
National
Council on Skin Cancer Prevention
Sturge-Weber
Syndrome
Sturge-Weber Foundation
National Organization of Vascular Anomalies (NOVA)
Vascular Birthmark Foundation
Tuberous
Sclerosis
National Tuberous Sclerosis
Association
Vitiligo
National Vitiligo Foundation
Xeroderma
Pigmentosum
Xeroderma Pigmentosum Society
Xeroderma Pigmentosum Family Support Group
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