Associations and Societies |Medical References | Online CME | Research

Patient Education and Support Groups

American Academy of Dermatology website designed for children
http://www.kidsskinhealth.org/

Albinism
National Organization for Albinism and Hypopigmentation

Alopecia Areata
National Alopecia Areata Foundation

A camp for young people with chronic skin conditions
Camp Discovery

Basal Cell Carcinoma Nevus Syndrome (also called Gorlin Syndrome)
Basal Cell Carcinoma Nevus Syndrome Life Support Network
http://www.gorlinsyndrome.org/

Congenital Nevi
Nevus Outreach
Nevus Network

Cutaneous T-Cell Lymphoma - Mycosis Fungoides
Cutaneous T-Cell Lymphoma Information Page

Ectodermal Dysplasia
National Foundation for Ectodermal Dysplasia

Ehlers-Danlos
Ehlers-Danlos National Foundation

Epidermolysis Bullosa
DEBRA

Eczema/Atopic Dermatitis
National Eczema Association

For kids: “Kids Skin Health"

Hemangioma
Hemangioma Education
National Organization of Vascular Anomalies (NOVA)
Vascular Birthmark Foundation

Ichthyosis
Foundation for Icthyosis and Related Skin Types, Inc.(FIRST)

Incontinentia Pigmenti
National Incontinentia Pigmenti Foundation

Klippel-Trenaunay Syndrome
K-T Support Group
Sturge-Weber Foundation

Lupus Erythematosus
Lupus Foundation of America

Mastocytosis
Mastocytosis Society
Pediatric Mastocytosis Organization, also known as Mastokids

Neurofibromatosis
National Neurofibromatosis Foundation

Parry-Romberg Syndrome
Parry-Romberg Syndrome Resource

Pediculosis/Head Lice
National Pediculosis Association

Pemphigus
National Pemphigus Foundation

Pityriasis Rubra Piliaris (PRP)
PRP support group

Porphyria
American Porphyria Foundation

Port Wine Stains
Sturge-Weber Foundation

Pseudoxanthoma Elasticum (PXE)
National Association for Pseudoxanthoma Elasticum
PXE International, Inc.

Psoriasis
National Psoriasis Foundation
Fundacion Psoriasis de Panama (for spanish-speaking patients)

Scleroderma
Scleroderma Foundation

Skin Cancer
Melanoma Patients' Information Page
National Council on Skin Cancer Prevention

Sturge-Weber Syndrome
Sturge-Weber Foundation
National Organization of Vascular Anomalies (NOVA)
Vascular Birthmark Foundation

Tuberous Sclerosis
National Tuberous Sclerosis Association

Vitiligo
National Vitiligo Foundation

Xeroderma Pigmentosum
Xeroderma Pigmentosum Society
Xeroderma Pigmentosum Family Support Group

Copyright© 1998–2014 Society for Pediatric Dermatology Disclaimer